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  • Glenn Hearson

Understanding Patient Priorities for Scientific Research on Pulmonary Fibrosis

Dr Amanda Goodwin, Dr Amanda Tatler and Dr Rachel Clifford, along with many other researchers in Translational Medical Science at the University of Nottingham and NIHR Nottingham Biomedical Research Centre want to know what patients, carers and healthcare professionals think the priorities should be for scientific research for people with Pulmonary Fibrosis.

Understanding Patient Priorities for Scientific Research on Pulmonary Fibrosis

This is an opportunity for people with pulmonary fibrosis and their carers to have their say on our research plans for years to come. If you have pulmonary fibrosis, or care for someone with pulmonary fibrosis, we want to know what you think are the important questions for us to try to answer with our research.

Our research

In pulmonary fibrosis the lungs become scarred, making it hard to breathe. The lungs are made from millions of building blocks called cells, and sometimes these cells behave in ways that cause lung scarring. There are lots of signals in our lungs that can change how our cells behave, and cells sometimes work together to make the scarring worse. We are trying to learn how these signals and cell behaviour cause pulmonary fibrosis so that new medicines can be made in future.

Why we want your opinion

To do our research, we work with cells and lung samples that have been donated by patients with pulmonary fibrosis. These samples are valuable gifts that have helped us to do our research for many years. We want to know what patients and their carers think about the research we should do in future, to make sure that we are using these samples in a way that is important to them.

How you can help

We would like to invite you to give your opinion on some questions that we could try to answer with our research. This is a short survey where you can tell us how important our research questions are to you. The survey should take 5-10 minutes to complete.

What we will do with the results

We will use your survey answers to help to decide which research questions to try to answer with our future research.


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