Interstitial lung disease (ILD) is an umbrella term that covers many different conditions.
Idiopathic pulmonary fibrosis (IPF) is the most common type of ILD.


Other names for IPF are cryptogenic fibrosing alveolitis or usual interstitial pneumonia.

When you have IPF, inflammation or scar tissue builds up in your lungs, making them thick and hard. This build-up of scar tissue is called fibrosis. As your lungs become stiffer and lose their elasticity, they are less able to take oxygen from the air you breathe.

Useful Links

NUH is host to the regional centre for Interstitial Lung Disease (ILD) and the national Lymphangioleiomyomatosis (LAM) Centre, providing care for patients with ILDs from across the East Midlands (Nottinghamshire, Derbyshire and Lincolnshire) and nationally for patients with LAM

Nottingham University Hospitals NHS Trust

Patients wanting further support and guidance on how to cope with living with the condition or to help someone who is, can get help from Nottingham IPF support group


Nottingham University Hospital pulmonary fibrosis support group meets at Edwalton Golf Club, Wellin Lane, Edwalton, Nottingham.


They have a lot of information and support on their Facebook Page.


You can also email: Email:

Nottingham RRU at Breathe Easy
Nottingham IPF Support Group

IPF Videos


What is IPF?

IPF Information

This animation from shows how Idiopathic Pulmonary Fibrosis (IPF) affects your lungs and it's possible causes.

Living with IPF: Joyce's story

Joyce was finally diagnosed with idiopathic pulmonary fibrosis (IPF) in 2012.

It had taken 4 years to get a diagnosis. After a year on the waiting list, Joyce underwent a lung transplant in January 2014. In this film, Joyce tells her story and talks about how IPF has affected her life and how the lung transplant has made a difference

Living with IPF: Colin's story

Colin was diagnosed with idiopathic pulmonary fibrosis (IPF) after he became breathless on a walking holiday in Cornwall.

In this film, Colin talks about how he is living with IPF and how he has been supported by the British Lung Foundation

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